Global Down Syndrome Foundation

#thankyou Rachel Paula Abrahamson and Today Show, for sharing Lisa and Nic White's story! Read how #GLOBAL supports mother and son, Lisa and Nic, who both happen to have Down syndrome. You can read more about their story here https://lnkd.in/gDPFWRrR #motherhood #doesntgetmedown #downsyndrome

Thank you Congresswoman Cathy McMorris Rodgers for meeting with us last week and for being an incredible champion for the Down syndrome community. We are looking forward to a House vote this evening on the DeOndra Dixon INCLUDE Project Act to ensure critical Down syndrome research funding at the National Institutes of Health (NIH). Together, we’re creating a brighter future! #INCLUDEAct #DownSyndromeAwareness

🌟 EXCITING news coming your way! 🌟 GLOBAL is thrilled to share that the U.S. House of Representatives plans to vote tomorrow night, Tuesday 9/17, on the DeOndra Dixon INCLUDE Project Act (H.R. 7406) to authorize increased funding for Down syndrome research from the National Institutes of Health (NIH). Named in honor of GLOBAL Ambassador DeOndra Dixon, this Act would ensure that the Down syndrome community continues to be prioritized in federal health research initiatives, especially those under the NIH INCLUDE Project. Specifically, it would boost funding for five-year periods and ultimately ensure a $250 million/year cap. Learn more: https://bit.ly/3ArbCao We are so grateful for our Congressional Champions, Reps. Cathy McMorris Rodgers, Diana DeGette, Rosa DeLauro, Tom Cole, Pete Stauber, Eleanor Holmes Norton, and David Trone, as well as our amazing advocates and self-advocates—we could not do this without YOU! 🙌 👀 Stay tuned for our updates on this legacy bill. We can’t wait to share the good news 🤞 and let you in on our plans to ensure the U.S. Senate also acts on the bill so it can be signed into law by the end of the year! #downsyndromerocks #dsrocks #downsyndromelove #downsyndromeawareness #t21 #downsyndromeresearch #globalrocks #downsyndromeworld #downsyndrome #nonprofit #denvernonprofit #disabilityinclusion #disabilityawareness #disabilityrights #congress

👏 👏 A round of applause for Abby, the star of the 2024 Annual Crnic Symposium! 👏 👏 Abby presented to over 150 researchers, clinicians, and trainees about the importance of involving people with Down syndrome in their work. We are so grateful for amazing self-advocates like Abby who gladly participate in research in the name of helping others. ❤️ Abby was joined by GLOBAL’s VP of research & medical care, Bryn Gelaro, who discussed our advocacy in Washington, DC , which resulted in the creation of the NIH’s INCLUDE project, and the importance of the DeOndra Dixon INCLUDE Project Act. Learn about why GLOBAL is working so hard to see this bill passed into law: https://bit.ly/3ArbCao #downsyndromerocks #dsrocks #downsyndromelove #downsyndromeawareness #t21 #globalrocks #downsyndromeworld #downsyndrome #nonprofit #denvernonprofit #downsyndromeresearch

Global Down Syndrome Foundation seeks stellar volunteers for Be Beautiful Be Yourself Fashion Show, Nov 16th in Denver, CO. If you are interested in helping spotlight the beauty that our Down syndrome community has to offer, register to volunteer at: https://bit.ly/4c5NV4B Currently seeking: - Live & Silent Auction Support - Runners - Model PALs - Greeters - Ballroom Setup & Cleanup & More!

¡El ultimo GLOBAL Webinar en Español de 2024 llegará el jueves 19 de septiembre! Únase a nosotros para aprender sobre como es el desarrollo del habla y el lenguaje en niños con Síndrome de Down. En esta sesión la Licenciada Figueroa explicara como es el desarrollo del habla y el lenguaje en niños con Síndrome de Down y la importancia del desarrollo de las habilidades de comunicación. También mostrará estrategias para el desarrollo del habla y el lenguaje que se pueden implementar en el hogar. Los miembros de GLOBAL también recibirán respuestas a sus preguntas por parte de la experta, Jamilet Figueroa. No se pierda este importante webinar regístrese hoy: https://bit.ly/3vNJR9U #elsindromededowneslomaximo #SDeslomaximo #amorporelsindromededown #concientizaciondelsindromededown #t21 #globallomaximo # #downsyndromeworld #sindromededown

𝗛𝗼𝘄 𝗗𝗼𝘄𝗻 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗮𝗻𝗱 𝗿𝗵𝗲𝘂𝗺𝗮𝘁𝗼𝗶𝗱 𝗮𝗿𝘁𝗵𝗿𝗶𝘁𝗶𝘀 𝗮𝗿𝗲 𝗵𝗲𝗹𝗽𝗶𝗻𝗴 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵𝗲𝗿𝘀 𝗳𝗶𝗻𝗱 𝘁𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀 𝗳𝗼𝗿 𝗔𝗹𝘇𝗵𝗲𝗶𝗺𝗲𝗿’𝘀, as told by Dr. Huntington Potter, Director of the University of Colorado Alzheimer’s and Cognition Center (a GLOBAL Affiliate), on Colorado Public Radio: https://bit.ly/3Tmf50p “…And the reason is that people with Down syndrome have three copies of chromosome number 21, and the main Alzheimer gene is on chromosome 21 that makes those amyloid, and that means that they're going to develop amyloid faster and earlier than typical people. What that knowledge gave us was that the amyloid deposit is really an important starting place in all Alzheimer's disease, and that has informed the development of many of the diagnostics and the treatments for typical Alzheimer's disease that would also help people with Down syndrome.” GLOBAL is proud to be the lead national advocacy organization that catalyzed the establishment of the INCLUDE Project, a Trans-NIH Down syndrome research program that funds hundreds of game-changing clinical trials across the country. #downsyndromerocks #dsrocks #downsyndromelove #downsyndromeawareness #t21 #globalrocks #downsyndromeworld #downsyndrome #nonprofit #denvernonprofit #downsyndromeresearch

🌟 𝗘𝘅𝗰𝗶𝘁𝗶𝗻𝗴 𝗡𝗲𝘄𝘀 𝗳𝗼𝗿 𝗦𝗶𝗲 𝗖𝗲𝗻𝘁𝗲𝗿 𝗳𝗼𝗿 𝗗𝗼𝘄𝗻 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗣𝗮𝘁𝗶𝗲𝗻𝘁𝘀❕ We are thrilled to announce that Dr. Nicole Baumer, a renowned neurologist and Down syndrome expert previously at Harvard School of Medicine and Boston Children’s Hospital, has been recruited to take the helm of the Anna & John J. Sie Center for Down Syndrome at Children’s Hospital Colorado! 🎉 Read all about it: https://bit.ly/3XdKZgK Dr. Baumer is replacing our beloved Dr. Fran Hickey who recently retired and who will be sorely missed. Having a sister with Down syndrome and having directed the Boston Children’s Hospital Pediatric Down Syndrome Program, Dr. Baumer brings over 15 years of experience in pediatric neurology and neurodevelopmental disabilities, as well as significant National Institutes of Health (NIH) research grants and publications to her role. She will lead the Sie Center's staff and mission to expand research and enhance and increase care hours for children and adolescents with Down syndrome. Her impressive background includes serving as the current president of the Down Syndrome Medical Interest Group-USA and working with GLOBAL on numerous conferences and grants. Huge shout out to Dr. Baumer’s awesome older sister, Heather, who happens to have Down syndrome! Please join us in welcoming Dr. Baumer as she takes the helm of the Sie Center, the largest Down syndrome center in the U.S. with patients from 32 states, Puerto Rico and 11 countries! #downsyndromerocks #dsrocks #downsyndromelove #downsyndromeawareness #t21 #globalrocks #downsyndromeworld #downsyndrome #nonprofit #denvernonprofit #downsyndromeresearch

¡El GLOBAL Webinar en Español llegará el jueves 19 de septiembre! Únase a nosotros para aprender sobre como es el desarrollo del habla y el lenguaje en niños con Síndrome de Down. Los miembros de GLOBAL también recibirán respuestas a sus preguntas por parte de la experta, Jamilet Figueroa. No se pierda este importante webinar regístrese hoy: https://bit.ly/3vNJR9U #elsindromededowneslomaximo #SDeslomaximo #amorporelsindromededown #concientizaciondelsindromededown #t21 #globallomaximo #downsyndromeworld #sindromededown

🥳 𝗢𝘃𝗲𝗿 𝟮𝟰,𝟱𝟬𝟬 self-advocates, families, and professionals supported by GLOBAL Awards! Read all about it: https://bit.ly/3T33sLC The GLOBAL Education and Employment Awards empower local Down syndrome organizations, supporting a total of 337 impactful programs to date. This year, we provided GLOBAL Education Awards to 11 exceptional programs dedicated to advancing medical care, mental health support, and educational opportunities for people with Down syndrome. Nine GLOBAL Employment Awards will also support programs that either employ people with Down syndrome or are led by them, fostering greater community inclusion and job opportunities. Congratulations to these remarkable local organizations making a difference on the front lines in their communities across the U.S. and around the globe! Together, we are fostering greater inclusion and advancing our mission to improve health outcomes. 💙💛 Down Syndrome Albania, Down Syndrome Association of Central Florida, Down Syndrome Association of Middle Tennessee, Down Syndrome Association of Memphis & the Mid-South, Down Syndrome Indiana, Buddy Up for Life, Inc, Down Syndrome Alabama, Down Syndrome Association of Greater St. Louis, Down Syndrome Association of Northeast Ohio, Sharing Down Syndrome Arizona, Upside Downs, Angel's center for Children with special needs., Down Syndrome Association of Central Oklahoma, Down Syndrome Association of Delaware, Down Syndrome Association of West Michigan, Jack's Basket, Qendra Xhonatan / Jonathan Center, North Carolina Down Syndrome Alliance, Jewish Union Foundation #downsyndromerocks #dsrocks #downsyndromelove #downsyndromeawareness #t21 #globalrocks #downsyndromeworld #downsyndrome #nonprofit #denvernonprofit #downsyndromeresearch #Alabama #Albania #Arizona #Delaware #Florida #Indiana #Louisiana #Ohio #Michigan #Minnesota #Missouri #NorthCarolina #NewYork #Tennessee #Uganda