Palliative care for Parkinson's disease: has the time come?
- PMID: 25795037
- DOI: 10.1007/s11910-015-0542-4
Palliative care for Parkinson's disease: has the time come?
Abstract
Although Parkinson's disease (PD) is traditionally viewed as a movement disorder which affects quality of life, recent literature has revealed an increased mortality, a high burden of difficult-to-manage non-motor symptoms (e.g., pain, fatigue), high caregiver distress, and a high utilization of medical services especially in the last year of life. Current medical systems have yet to adequately respond to this mounting evidence through the adoption of palliative care practices and through the provision of palliative care services to both PD patients and to affected families. This holistic, interdisciplinary approach to practice would enhance care delivery, identify and address unmet needs, and avoid interventions and hospitalizations especially in the last months of life. As we approach an era of increased life expectancy, increasing comorbidities among patients, and escalating healthcare costs, physicians must be proactive in focusing on quality of life, reducing medical interventions, and respecting patient autonomy.
Similar articles
-
Palliative care for Parkinson's disease: a summary of the evidence and future directions.Palliat Med. 2013 Oct;27(9):805-10. doi: 10.1177/0269216313495287. Epub 2013 Jul 9. Palliat Med. 2013. PMID: 23838377
-
Palliative Care and Nonmotor Symptoms in Parkinson's Disease and Parkinsonism.Int Rev Neurobiol. 2017;134:1239-1255. doi: 10.1016/bs.irn.2017.05.014. Epub 2017 Jul 4. Int Rev Neurobiol. 2017. PMID: 28805571 Review.
-
Palliative care for Parkinson's disease.Ann Palliat Med. 2018 Jul;7(3):296-303. doi: 10.21037/apm.2017.12.02. Epub 2018 Jan 4. Ann Palliat Med. 2018. PMID: 29307212 Review.
-
Palliative care for Parkinson's disease: Patient and carer's perspectives explored through qualitative interview.Palliat Med. 2017 Jul;31(7):634-641. doi: 10.1177/0269216316669922. Epub 2016 Sep 28. Palliat Med. 2017. PMID: 27683476
-
The conceptual framework of palliative care applied to advanced Parkinson's disease.Parkinsonism Relat Disord. 2012 Dec;18 Suppl 3:S2-5. doi: 10.1016/j.parkreldis.2012.06.012. Epub 2012 Jul 5. Parkinsonism Relat Disord. 2012. PMID: 22771241 Review.
Cited by
-
"No One Can Tell Me How Parkinson's Disease Will Unfold": A Mixed Methods Case Study on Palliative Care for People with Parkinson's Disease and Their Family Caregivers.J Parkinsons Dis. 2022;12(1):207-219. doi: 10.3233/JPD-212742. J Parkinsons Dis. 2022. PMID: 34542031 Free PMC article.
-
Palliative Care for Parkinson's Spectrum Disorders: an Emerging Approach.Neurotherapeutics. 2020 Oct;17(4):1456-1463. doi: 10.1007/s13311-020-00989-1. Epub 2021 Jan 13. Neurotherapeutics. 2020. PMID: 33439466 Free PMC article. Review.
-
Advance Directives of German People with Parkinson's Disease Are Unspecific in regard to Typical Complications.Parkinsons Dis. 2019 Aug 4;2019:2107821. doi: 10.1155/2019/2107821. eCollection 2019. Parkinsons Dis. 2019. PMID: 31482006 Free PMC article.
-
Palliative care for patients with Parkinson's disease: study protocol for a mixed methods study.BMC Palliat Care. 2017 Nov 25;16(1):61. doi: 10.1186/s12904-017-0248-2. BMC Palliat Care. 2017. PMID: 29178865 Free PMC article. Clinical Trial.
-
Disease modification in Parkinsonism: obstacles and ways forward.J Neural Transm (Vienna). 2022 Sep;129(9):1133-1153. doi: 10.1007/s00702-022-02520-6. Epub 2022 Jun 13. J Neural Transm (Vienna). 2022. PMID: 35695938 Free PMC article. Review.
References
Publication types
MeSH terms
LinkOut - more resources
Full Text Sources
Medical
Research Materials