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Review
. 2019 Aug;19(4):383-396.
doi: 10.1080/14737167.2019.1612242. Epub 2019 May 9.

The evolving role of patient preference studies in health-care decision-making, from clinical drug development to clinical care management

Yanina Jackson  1 , Ellen Janssen  2 , Ryan Fischer  3 , Katherine Beaverson  4 , Jane Loftus  5 , Kate Betteridge  5 , Stephanie Rhoten  6 , Emuella Flood  2 , Mark Lundie  7
Affiliations
Review

The evolving role of patient preference studies in health-care decision-making, from clinical drug development to clinical care management

Yanina Jackson et al. Expert Rev Pharmacoecon Outcomes Res. 2019 Aug.

Abstract

Introduction: There is a growing trend of using patient preference studies to help incorporate the patient perspective into clinical drug development, care management, and health-care decision-making. Collecting and interpreting patient preference data is integral to multi-stakeholder engagement, patient-centric drug development, and clinical care management. Operationally, challenges exist in understanding 'when' and 'how' to embark on patient preference studies. This review will provide a brief overview of stated-preference methods, discuss applications throughout the clinical drug development and care management, and highlight how preference studies serve as a powerful tool for quantifying patient experiences for better outcomes. Areas covered: We present case studies to complement the different applications of stated-preference methods in clinical drug development and care management. We discuss the applications of preference data to help inform evidence-based patient advocacy, clinical development strategy, operational feasibility, regulator benefit-risk assessments, health technology assessments, and clinical decision-making. Expert commentary: Patient preference studies can serve as a powerful tool to engage patients and their communities as well as quantify the patient voice across different stages of clinical drug development and care management to support patient-centric health-care decision-making. It is expected that the application of these strategies will quickly advance in the coming years.

Keywords: Stated-preference methods; benefit-risk assessment; drug development; health technology assessment; patient preferences; patient-centered.

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