Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2019 Aug;221(2):86-94.
doi: 10.1016/j.ajog.2019.02.033. Epub 2019 Feb 18.

Assessing research gaps and unmet needs in endometriosis

Sawsan As-Sanie  1 , Rebecca Black  2 , Linda C Giudice  3 , Tanika Gray Valbrun  4 , Jhumka Gupta  5 , Brittany Jones  6 , Marc R Laufer  7 , Alexandra T Milspaw  8 , Stacey A Missmer  9 , Abby Norman  10 , Robert N Taylor  11 , Kedra Wallace  12 , Zev Williams  13 , Paul J Yong  14 , Rebecca A Nebel  15
Affiliations
Review

Assessing research gaps and unmet needs in endometriosis

Sawsan As-Sanie et al. Am J Obstet Gynecol. 2019 Aug.

Abstract

Endometriosis, a systemic disease that is often painful and chronic, affects ∼10% of reproductive-age women. The disease can have a negative impact on a patient's physical and emotional well-being, quality of life, and productivity. Endometriosis also places significant economic and social burden on patients, their families, and society as a whole. Despite its high prevalence and cost, endometriosis remains underfunded and underresearched, greatly limiting our understanding of the disease and slowing much-needed innovation in diagnostic and treatment options. Due in part to the societal normalization of women's pain and stigma around menstrual issues, there is also a lack of disease awareness among patients, health care providers, and the public. The Society for Women's Health Research convened an interdisciplinary group of expert researchers, clinicians, and patients for a roundtable meeting to review the current state of the science on endometriosis and identify areas of need to improve a woman's diagnosis, treatment, and access to quality care. Comprehensive and interdisciplinary approaches to disease management and increased education and disease awareness for patients, health care providers, and the public are needed to remove stigma, increase timely and accurate diagnosis and treatment, and allow for new advancements.

Keywords: chronic pain; endometriosis; infertility; pelvic pain; stigma; women’s health.

PubMed Disclaimer

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

Publication types

MeSH terms