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An e-Learning Caregiving Program for Prostate Cancer Patients and Family Members

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Abstract

e-health interventions have the potential to augment caregiving training for management of chronic disease. Instruction on caregiving functions often key to patients and families' well being is time consuming but not reimbursable in our current health care system. A theoretically defined interactive multimedia program is described which would assess patient and family member's level of preparedness for specific caregiving functions for prostate cancer and provide tailored skill building vignettes on caregiving techniques. Maximizing today's technology, this program is best designed for a hybrid delivery utilizing both web-based resources and a CD-ROM. Feedback from 45 prostate patients and family members from a Midwest cancer center on perceived needs for caregiving training underscores the potential value of a computer supported intervention for some patients and families. Implementation of the software, marketing, and distribution will be guided in part by recent e-health experiences that leave many health professionals appropriately skeptical about the utility of such products.

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REFERENCES

  1. Evans, J. H. C., Collier, J., Crook, I., Garrud, P., Harris, P., Mackinlay, D. R. E., and Redsell, S. A., Using multimedia for patient information—A program about nocturnal enuresis. Br. J. 81:120–122, 1998.

    Google Scholar 

  2. Bensen, C., Beutner, K., Conant, M., Davis, G., Reitano, M., Skinner, E., Stern, J., Tyring, S., and Wald, A., An interactive, computer-based program to educate patients about genital herpes. Sex. Transm. Dis. 26(6):364–368, 1999.

    Google Scholar 

  3. Sefton, E., Garrud, P., Glazebrook, C., and Zaki, I., Educating patients about malignant melanoma: Computer-assisted learning in a pigmented lesion clinic. Br. J. Dermatol. 142(1):66–71, 2000.

    Google Scholar 

  4. Marrero, D. G., Computer-assisted diabetes dietary self-management counseling: A technology for addressing a public health need. Med. Care 38(11):1059–1061, 2000.

    Google Scholar 

  5. Glasgow, R. E., and Toobert, D. J., Brief, computer-assisted diabetes dietary self-management counseling: Effects on behavior, physiologic outcome quality of life. Med. Care 38:1062–1102, 2000.

    Google Scholar 

  6. Bartholomew, L. K., Czyzewski, D. I., Fernandez, M., Gold, R. S., Parcel, G. S., Shegog, R., Sockrider, M. M., and Swank, P., Watch, discover, think, and act: Evaluation of computer-assisted instruction to improve asthma self-management in inner-city children. Patient Educ. and Couns. 39:269–280, 2000.

    Google Scholar 

  7. Hughes, L. C., Hodgson, N. A., Muller, P., Robinson, L. A., and McCorkle, R., Information needs of elderly postsurgical cancer patients during the transition from hospital to home. J. Nurs. Scholarsh. 32(1):25–30, 2000.

    Google Scholar 

  8. Lewis, M., Pearson, V., Corvoran-Perry, S., and Narayan, S., Decision making by elderly patients with cancer and their caregivers. Cancer Nurs. 20(6):397–398, 1997.

    Google Scholar 

  9. Magnusson, K., Moller, A., Ekman, T., and Wallgreen, A., A qualitative study to explore the experience of fatigue in cancer patients. Eur. J. Cancer Care 8(4):224–232, 1999.

    Google Scholar 

  10. Schulz, R., and Scott, R. B., Caregiving as a risk for mortality. JAMA 282(23):2215–2219, 1999.

    PubMed  Google Scholar 

  11. Leis, A. M., Kristijanson L., Koop, P. M., and Laizner, A., Family health and the palliative care trajectory: A cancer research guide. Cancer Prev. Control 1(5):352–360, 1997.

    Google Scholar 

  12. Nijboer, C., Templeaar, R., Sanderman, R., Triemstra, M., Spruijt, R. J., and van den Bos, G. A., Cancer and caregiving: The impact of the caregiver's health. Psychooncology 7(1):3013, 1998.

    Google Scholar 

  13. Yost, L. S., Cancer patients and home care. Cancer pract.: A Multidisciplinary J. Cancer Care 3(2):83–87, 1995.

    Google Scholar 

  14. Bull, M. J., and Kane, R. L., Gaps in discharge planning. J. Appl. Gerontol. 15(4):486–500, 1996.

    Google Scholar 

  15. Bonnema, J., van Wersch, A. M., van Geel, A. N., Pruyn, J. F., Schmitz, P. I., Paul, M. A., and Wiggers, T., Medical and psychosocial effects of early discharge planning after surgery for breast cancer: Randomized trial. BMJ 316:1267–1271, 1998.

    Google Scholar 

  16. Glynee-Jones, R., Chait, L., and Thomas, S. F., When and how to discharge cancer survivors in long term remission from follow-up: The effectiveness of a contract. Clin Oncol 9(1):25–29, 1997.

    Google Scholar 

  17. Wingo, P. A., Guest, J. L., McGinnis, L., Miller, D. S., Rodriguez, C., Cardinez, C. J., Morrow, B., and Thun, M. J., Pattern of inpatient surgeries for the top four cancers in the United States, National Hospital Discharge Survey 1988–95. Cancer Causes Control 11(6):497–512, 2000.

    Google Scholar 

  18. Aucoin-Gallant, G., Description of the caregiver's educational needs and the degree of her dissatisfaction. Can. Oncol. Nurs. J. 10(9, Suppl.): 165–167, 170–174, 1999.

    Google Scholar 

  19. Pautler, S. E., Chin, J., Dugas, G. R., Ferri, M., Hardie, W. R., Pus, N., and Tan, J. K., Use of the internet for self-education by patients with prostate cancer. Urology 57(2):230–233, 2001.

    Google Scholar 

  20. Fossa, S. D., Influence of urological morbidity on quality of life in patients with prostate cancer. Eur. Urology 31:3–8, 1997.

    Google Scholar 

  21. Feldman, S. D., What questions do patients with curable prostate cancer want answered. Med Decis. Making 20(1):7–19, 2001.

    Google Scholar 

  22. Feldman-Stewart, D. Brundage, M. D., Mackillop, W. J., and Nickel, J. C., The information required by patients with early-stage prostate cancer in choosing their treatment. BJU Int. 87:218–223, 2001.

    Google Scholar 

  23. Haggmark C., and Nisson B., Effects of an intervention programme for improved discharge planning. Nurs. Sci. Res. Nordic Countries 17(2):4–8, 1997.

    Google Scholar 

  24. SellersT. S., A model of collaborative health care in outpatient medical oncology. Fam. Syst. Health 18(1):19–33, 2000.

    Google Scholar 

  25. Carroll, J. C., Gary, R. E., Orr, V. J., Chart, P., Fitch, M., and Greenberg, M., Changing physicians attitudes toward self-help groups: An educational intervention. J. Cancer Educ. 15(1):14–18, 2000.

    Google Scholar 

  26. Robinson, K. D., Angeletti, K. A., Barg, F. K., Pasacreta, J. V., McCorkle, R., and Yasko, J. M., The development of a family caregiver cancer education program. J. Cancer Educ. 13(2):116–121, 1998.

    Google Scholar 

  27. Toseland, R. W., Blanchard, C. G., and McCallion, P., A problem solving intervention for caregivers of cancer patients. Soc. Sci. Med. 40(4):517–528, 1995.

    Google Scholar 

  28. Fishbein, M., and Ajzen, I., Belief, Attitude, Intention and Behavior: An Introduction to Theory and Research, Addison-Wesley, Reading, MA, 1975.

    Google Scholar 

  29. Bandura, A., Self-efficacy mechanism in physiological activation and health-promoting behavior. In Madden, J., IV. (ed.), Neurobiology of Learning, Emotion and Affect, Raven, New York, pp. 229–269, 1991.

    Google Scholar 

  30. Fishbein, M., Developing effective behavior change interventions: Some lessons learned from behavioral research. In Backer, T. E., David, S. L., and Soucy, G. (eds.), Reviewing the Behavioral Sciences Knowledge Base on Technology Transfer (NIDA Research Monograph No. 155, NIH Pub. No. 95–4035), National Institute on Drug Abuse, Rockville, MD, pp. 246–261, 1995.

    Google Scholar 

  31. Bandura, A., Self efficacy: The foundation of agency. Control of Human Behavior, Mental Processes, Consciousness Essays in Honor of the 60th Birthday of August Flammer, pp. 17–33, 2000.

  32. Bartholomew, L. K., Parcel, G. S., Kok, G., and Gottlieb, N. H., Intervention Mapping, Designing Theory and Evidence-Based Health Promotion Programs, Mayfield Publishing Company, 2001.

  33. Fitch, M. I., Franssen, E., Gray, R., and Johnson, B., Men's perspectives on the impact of prostate cancer: Implications for oncology nurses. Oncol. Nurs. Forum 27(8):1255–1263, 2000.

    Google Scholar 

  34. Wong, F., Bunston, T., Cheung, A. M., Dancey, J., McAndrews, M. P., Meana, M., and Stewart, D. E., Men with prostate cancer: Influence of psychological factors on informational needs and decision making J. Psychosom. Res. 49:13–19, 2000.

    Google Scholar 

  35. Gray, R. E., Fitch, M. I., Klotz, L., Labrecque, M., and Phillips, C., Presurgery experiences of prostate cancer patients and their spouses. Cancer Pract. 7(3):130–135, 1999.

    Google Scholar 

  36. Visser, A., and Van Andel, G., Education and counseling in cancer: The neglected case of the prostate cancer patients. Patient Educ. Couns. 40:197–199, 2000.

    Google Scholar 

  37. Schumacher, K. L., Reconceptualizing family caregiving: Family-based illness care during chemotherapy. Res. Nurs. Health 19(4):261–271, 1996.

    Google Scholar 

  38. Schumacher, K. L., Stewart, B. J., Archbold, P. G., Dodd, M. J., and Dibble, S. L., Family caregiving skill: Development of the concept. Res. Nurs. Health 23(3):191–203, 2000.

    Google Scholar 

  39. Bandura, A., Self Efficacy: Toward a Unifying Theory of Behavioral Change, Psychology Press/Taylor & Francis, Philadelphia, PA, 1999.

    Google Scholar 

  40. Gray, R., Prostate cancer: What men want from their family physicians. Can. Fam. Physician 46:1713–1715, 2000.

    Google Scholar 

  41. Pickett, M., Bruner, D. W., Burggraf, V., and Joseph, A., Prostate cancer elder alert: Living with treatment choices and outcomes. J. Gerontol. Nurs. 26(2):22–34, 2000.

    Google Scholar 

  42. Kleinke, J. D., Vaporware.com: The failed promise of the health care internet. Health Affairs 19(6):57–71, 2000.

    Google Scholar 

  43. Shaw, M. J., Adlis, S. A., Beebe, T. J., Cass, O. W., and Tomshine, P. A., A randomized, controlled trial of interactive, multimedia software for patient colonoscopy education. J. Clin. Gastroenterol. 32(2):142–147, 2000.

    Google Scholar 

  44. McKay, H. G., Eakin, E. G., Glasgow, R. E., King, D., and Seeley, J. R., The Diabetes Network Internet-Based Physical Activity Intervention: A randomized pilot study. Diabetes Care 24(8):1328–1334, 2001.

    Google Scholar 

  45. Murray, E., Coulter, A., Davis, H., Gray, A., Haines, A., and See Tai, S., Randomised controlled trial of an interactive multimedia decision aid on benign prostatic hypertrophy in primary care. Br. Med. J. 323:1–6, 2001.

    Google Scholar 

  46. Jenkinson, J., Development of a hypermedia program designed to assist patients with localized prostate cancer in making treatment decisions. J. Biocommun. 25(2):2–11, 1998.

    Google Scholar 

  47. Kassirer, J. P., Patients, physicians and the Internet. Health Affairs 19(6):115–123, 2000.

    Google Scholar 

  48. Glaser, J. P., and Leslie, D. Hsu., The Strategic Application of Information Technology in Healthcare Organizations, McGraw-Hill, New York, 1999.-

    Google Scholar 

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Author information

Authors and Affiliations

  1. Department of Community Health, University of Illinois, Champaign, Illinois, 61822

    Janet Reis

  2. Leo Media, Inc., Urbana, Illinois

    Brendan McGinty

  3. Provena Covenant Medical Center, West Park Street, Urbana, Illinois

    Sandi Jones

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  1. Janet Reis
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  2. Brendan McGinty
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  3. Sandi Jones
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Correspondence to Janet Reis.

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Reis, J., McGinty, B. & Jones, S. An e-Learning Caregiving Program for Prostate Cancer Patients and Family Members. Journal of Medical Systems 27, 1–12 (2003). https://doi.org/10.1023/A:1021040911088

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  • DOI: https://doi.org/10.1023/A:1021040911088

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