followME Fabry Registry 4+

New England Survey Systems, Inc

    • Free

Screenshots

Description

In participating in the followME Registry, not only are you a Pathfinder, you are also an ambassador for Fabry disease – thank you for being willing to share your journey. followME is a disease registry that will track the health of people living with Fabry disease over time. The goal is to evaluate how different types of disease management affect people living with Fabry. followME will gather and ultimately share data that can be used to support the broader Fabry Community. As part of the registry, you will be asked to fill out Patient Reported Outcomes (PRO) surveys using a secure website, smart phone or tablet. These systems are validated and secure, meaning that no one outside of the registry can access your data.

What’s New

Version 1.0.0.4

minor update for iOS compatibility

App Privacy

The developer, New England Survey Systems, Inc, indicated that the app’s privacy practices may include handling of data as described below. For more information, see the developer’s privacy policy.

Data Not Collected

The developer does not collect any data from this app.

Privacy practices may vary based on, for example, the features you use or your age. Learn More

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